Living with ME and Chronic Fatigue Syndrome

Living with ME and Chronic Fatigue Syndrome


ME/CFS affects an estimated 250,000 people in the UK, roughly 3 in every 1,000 people.

Chronic Fatigue conditions are some of the most frustrating and life-altering conditions to suffer from, so why are they still so poorly understood?

As of 2020, medical science still cannot explain why some people get chronic fatigue syndromes and there is very little effective treatment. While many people with ME/CFS are able to live a fairly normal life despite their symptoms, a significant minority have symptoms so severe that they are confined to their house, or even their bed, and suicide rates are well above the national average.

This much-needed, evidence-based guide for people struggling with ME/CFS, or their friends and family, will provide information and advice about the nature of the condition, how it progresses, and what they can do to improve their health. Many treatments are therapeutic, so Living with ME and Chronic Fatigue Syndrome will be written by two leading experts - consultant rheumatologist, Dr Gerald Coakley, and occupational therapist, Beverly Knops.


  • 'This comprehensive yet highly accessible tome provides the reader with a holistic consideration of the topic of ME/CFS in an engaging and sympathetic manner. I highly recommend this to both patients with ME/CFS as well as the clinicians that look after them'
    Professor Melvin D Lobo, Clinical Hypertension Specialist, Consultant in Cardiovascular Medicine

About the authors

Dr Gerald Coakley

Dr Gerald Coakley has worked in the NHS for over 30 years. He has been a Consultant Physician and Rheumatologist in South London since 2000 and was a Director of Medical Education for 10 years. Since 2001, he has been involved in the care of people with ME/CFS, and runs a weekly private Fatigue Clinic at Keats House and at The Harley Street Clinic.
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Beverly Knops

Beverly Knops Dip COT, MRCOT, MBACME is a Specialist Occupational Therapist with more than thirty years' experience. She has spent the majority of her career working with people experiencing persistent pain and fatigue. She worked in North Bristol NHS Trust (NBT) for twenty-nine years, starting in the rheumatology service, then moving into the Specialist Pain and ME/CFS services. She also spent a period of nine years working one day a week for the Bath Paediatric ME/CFS service, developing her knowledge and expertise in this age group. In 2012, Beverly started work as an associate therapist with Vitality360, a private company working exclusively with people experiencing pain and fatigue. She now leads this specialist team full-time. Beverly is a trustee of the British Association of Clinicians working in ME/CFS (BACME) and is passionate about sharing knowledge and skills with other health professionals.
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